Many people are experiencing some annoyance and fatigue from the ALS ice bucket challenge taking over their news feed on social media. The reality is awareness of a need produces discomfort and discomfort produces action.
This silly idea with little budget and little production involved has caused enough annoyance to shift complacency. The Ice bucket challenge is a testament to the power of social media to get the world to notice the needs of a few who are in mortal peril. This is why we believe in social media as the modern engine for discovery of ideas and opportunities.
If the ice bucket challenge videos are becoming the internet equivalent of a rock in your shoe then they are working.
Complacency is the enemy here. Anthony Carbajal made this awesome vide about why this is so important. Watch the whole thing. it’s worth it.
In his video Anthony comments that only 30,000 people in the U.S. have ALS and he is one of them. He is fully aware that there is little hope because there is no cure and no conclusive treatment for ALS. The afflicted population is not a large enough problem to be economically viable for drug companies to solve. With the high costs of research, testing, and trials for FDA approval. all 30,000 of these people are sentenced to a slow and painful deterioration and eventually death.
This isn’t because drug companies are bad.
Small populations like the ALS market are a hard problem for profit industry to solve. that’s why Non Profits like ALS TDI exist. If regular people band together to give to the research to help find a drug the research can be done outside of the for profit world and can hopefully move towards a cure of this rare and deadly disease.
In 1999, James Allen Heywood realized that a gap exists in the preclinical development of therapeutics for ALS and founded the ALS Therapy Development Institute (ALS TDI) as an independent research center with a singular focus: develop effective therapeutics that slow and stop amyotrophic lateral sclerosis (ALS, Lou Gehrig’s disease). As a 501(c)(3) nonprofit organization, ALS TDI becomes the world’s first nonprofit biotechnology company.
The ALS ice bucket challenge is a simple way that this research organization has reached and mobilized thousands of new donors and generated more capital to drive medical research that has no requirement to produce a direct profit for the financial backers. The Social campaign is groundbreaking in its simplicity and virality and the organization is groundbreaking in its method of addressing the problem.
Roguebotic will not be making a video. We think Anthony’s video is more effective than any we could make. We will be making a donation to ALS TDI to support this great work.
Read more about the ALS TDI here: www.ALS.net